Genzyme Corporate Search Contact Us Genzyme Websites
LysoSomal Learning
Find Doctors and Treatment Centers
Patient Societies
Disease Registries
Publications
LSD Events
Insurance, Reimbursement, & Funding
LSD Medical Network
Related Resources
Glossary
Related Resources

Organizations for Further Information


The resources listed below can offer information and services for various lysosomal disorders. (For organizations that focus specifically on patient support and advocacy, see the Patient Societies page.)

National Institute of Neurological Disorders and Stroke - information on disorders
www.ninds.nih.gov/health_and_medical/disorders

National Center for Biotechnology Information - OMIM(TM) - Online Mendelian Inheritance in Man (TM) - Genetic disorder database
www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM

Orphanet - rare disease information (multiple languages)
www.orpha.net/

United States National Library of Medicine - medical subject headings (search)
www.nlm.nih.gov/mesh

University of Washington, GeneTests.org

www.genetests.org



Doctors & Treatment Centers
Looking for a treatment center with experience in treating LSD patients?

Support for Patients
Patient societies can offer emotional and practical support to patients, important with rare diseases like LSDs.

Genzyme Corporation
500 Kendall Street
Cambridge, MA USA 02142
1-617-768-9000
Toll Free: 800-745-4447

Genzyme Europe BV
Gooimeer 10
1411 DD Naarden
The Netherlands
31 35 699 1200