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Related Resources
Glossary
Related Resources

The resources listed below can offer information and services for various lysosomal disorders. (For organizations that focus specifically on patient support and advocacy, see the Patient Societies page.)

National Institute of Neurological Disorders and Stroke - information on disorders
www.ninds.nih.gov/health_and_medical/disorders

National Center for Biotechnology Information - OMIM(TM) - Online Mendelian Inheritance in Man (TM) - Genetic disorder database
www.ncbi.nlm.nih.gov/

Orphanet - rare disease information (multiple languages)
www.orpha.net/

United States National Library of Medicine - medical subject headings (search)
www.nlm.nih.gov/mesh

University of Washington, GeneTests.org
www.genetests.org/

For organizations that specifically focus on patient support and advocacy, you may want to visit the Patient Societies page.



Doctors & Treatment Centers
Looking for a treatment center with experience in treating LSD patients?

Disease Registries
Registries have been established for several LSDs to help keep physicians up to date on clinical findings and care options.

Find out about LSD registries


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