There are treatment centers that provide specialized diagnostic and treatment services for patients with lysosomal storage diseases. They are staffed by medical professionals who specialize in the treatment of these diseases (physicians, geneticists, hematologists, genetic counselors, and others). These experts are available to offer support for these challenging conditions.
Genzyme maintains a list of treatment centers noted for their experience and expertise in lysosomal storage disease research and treatment.
Contact Genzyme Care Coordination at 1-800-745-4447 (option 3) for a list of treatment centers across the United States.
Need Additional Help?
We're constantly expanding our network of specialists and facilities. If you can't find what you're looking for on this site, please contact Genzyme for more assistance.
Support for Patients
Patient societies can offer emotional and practical support to patients, important with rare diseases like LSDs.